Anger Today Chris had appointments with the pulmonologist for the first time, and then his allergist, whom we’ve been seeing for forever. The appointments went well, as well as they could have gone. We are making strides to figure out the cause behind everything. It’s Read More
Category: EoE
Struggles in Faith
Struggles in Faith Being a mom to special needs children and medically complex children is exhausting. It’s lonely. It’s draining. You have so much on your shoulders. You have the entire world, or what feels like it, resting on your shoulders. Your children depend Read More
EOE Heartache
Heartache Chris has been having a really hard time with his EOE. He is old enough now to realize he’s different, and that he can’t be like the other kids. He is realizing that he can’t have the food everyone else can have, and Read More
Bit of an Update
Update Apologies I want to apologize for my silence these past few months. It’s been busy, tiring, and frustrating. My own personal journey has changed, and I’ve recently started the Ketogenic Diet, following the Ketogenic Dieters group on Facebook. I will make my Read More
Summer Fun
Apologies I want to apologize for being so quiet lately. Our summer has been full of fun as well as changes. I haven’t had the emotional capacity to blog about everything, but just know it’s been happening, and we’ve been living up summer. Kasey is Read More
Big Huge Chris Update
Big Chris Update Apologies I need to apologize for not writing this sooner. I admit the surgery was kind of an emotional tipping point for me. Kasey came home, and it was a great visit. He surprised us by bringing his truck to the house Read More
He’s a Dragon!
Why Unicorn? A friend of mine once referred to herself and her daughter as unicorns, because they’re rare and very special. They’re fighting EOE, and no one person is the same, and everyone responds differently. She referred to Chris as a unicorn because of this as Read More