Broken Emotions Nobody thinks about what it would be like to be the mom of a child with special medical needs. Nobody wants to think about anything other than their child being perfectly healthy and thriving. When I first got the 2 lines on Read More
Category: EoE
EOE Heartache
Heartache Chris has been having a really hard time with his EOE. He is old enough now to realize he’s different, and that he can’t be like the other kids. He is realizing that he can’t have the food everyone else can have, and Read More
Bit of an Update
Update Apologies I want to apologize for my silence these past few months. It’s been busy, tiring, and frustrating. My own personal journey has changed, and I’ve recently started the Ketogenic Diet, following the Ketogenic Dieters group on Facebook. I will make my Read More
Summer Fun
Apologies I want to apologize for being so quiet lately. Our summer has been full of fun as well as changes. I haven’t had the emotional capacity to blog about everything, but just know it’s been happening, and we’ve been living up summer. Kasey is Read More
Big Huge Chris Update
Big Chris Update Apologies I need to apologize for not writing this sooner. I admit the surgery was kind of an emotional tipping point for me. Kasey came home, and it was a great visit. He surprised us by bringing his truck to the house Read More
He’s a Dragon!
Why Unicorn? A friend of mine once referred to herself and her daughter as unicorns, because they’re rare and very special. They’re fighting EOE, and no one person is the same, and everyone responds differently. She referred to Chris as a unicorn because of this as Read More
Frustration
Frustration and Sadness I am so frustrated by this elimination diet. I realize we have to do it for my son’s health. I get that, so please don’t comment telling me how horrible of a mother I am. I get it. It’s needed. However, that Read More
EOE Update
Eosinophilic Esophagitis Update Whew, I’m so glad this is done, so glad. Today we had Chris’ appointment for his Eosinophilic Esophagitis. This was our first appointment with the team since we moved away, and since he got diagnosed back when he was 3. It had Read More
When Ear Pain Isn’t Ear Pain
Allergy Season In case anyone has missed the weather reports, it is full blown allergy season here in Texas. The cars are yellow. When the the wind blows clouds of yellow pollen blow down the street. We went to the park yesterday and my black Read More