Struggles in Faith Being a mom to special needs children and medically complex children is exhausting. It’s lonely. It’s draining. You have so much on your shoulders. You have the entire world, or what feels like it, resting on your shoulders. Your children depend Read More
Category: Eosinophilic Esophagitis
EOE Heartache
Heartache Chris has been having a really hard time with his EOE. He is old enough now to realize he’s different, and that he can’t be like the other kids. He is realizing that he can’t have the food everyone else can have, and Read More
Bit of an Update
Update Apologies I want to apologize for my silence these past few months. It’s been busy, tiring, and frustrating. My own personal journey has changed, and I’ve recently started the Ketogenic Diet, following the Ketogenic Dieters group on Facebook. I will make my Read More
Big Huge Chris Update
Big Chris Update Apologies I need to apologize for not writing this sooner. I admit the surgery was kind of an emotional tipping point for me. Kasey came home, and it was a great visit. He surprised us by bringing his truck to the house Read More
He’s a Dragon!
Why Unicorn? A friend of mine once referred to herself and her daughter as unicorns, because they’re rare and very special. They’re fighting EOE, and no one person is the same, and everyone responds differently. She referred to Chris as a unicorn because of this as Read More
Frustration
Frustration and Sadness I am so frustrated by this elimination diet. I realize we have to do it for my son’s health. I get that, so please don’t comment telling me how horrible of a mother I am. I get it. It’s needed. However, that Read More
EOE Update
Eosinophilic Esophagitis Update Whew, I’m so glad this is done, so glad. Today we had Chris’ appointment for his Eosinophilic Esophagitis. This was our first appointment with the team since we moved away, and since he got diagnosed back when he was 3. It had Read More
When Ear Pain Isn’t Ear Pain
Allergy Season In case anyone has missed the weather reports, it is full blown allergy season here in Texas. The cars are yellow. When the the wind blows clouds of yellow pollen blow down the street. We went to the park yesterday and my black Read More
Maybe We Can Do This
So not only are we dealing with EOE, food allergies, and everything that goes along with that, but I am also homeschooling. I pulled the boys from school a couple of weeks ago and have decided that this is what will be best for them, Read More
Lots of Tears
Today was our first grocery shopping trip with our major elimination diet. When I say major elimination, I mean I read every label. I did research before going to the store. I was not going to screw up by accidentally getting corn or dairy somehow. Read More